Melissa Verleg (middle) has been fighting for access to medication for her cystic fibrosis. (Photo submitted)

Okanagan Walks to Make Cystic Fibrosis History

Penticton and Vernon two of 11 that have events taking place Saturday, May 26

During Cystic Fibrosis Awareness Month, participants from more than 70 communities in Canada will come together to participate in The Walk to Make Cystic Fibrosis History on Sunday, May 26.

The Walk to Make Cystic Fibrosis History is returning to Vernon at Polson Park.

“This is the first walk recently. There used to be a walk here years ago but there wasn’t anyone to run it,” said Melissa Verleg, who stepped up to orgnaize the event this year. “I’m not sure when the last one was.”

Verleg, who has spent over a year fighting the government for rights to medication for her cystic fibrosis, attended the walk in Penticton with her family last year. She lost access to a medication called Orkambi on Jan. 20, 2018 and with it, she lost the ability to perform even the simplest of tasks such as cooking dinner and playing with her kids.

When The Morning Star reached out to ask if she has had any success, she wrote, “I don’t have much of an update pertaining to my fight for Orkambi. The government still hasn’t changed their stance on anything.”

Related: MLA pushing province and pharmaceutical to save Vernon woman

Related: Melissa’s battle hurts

This year marks the 15th anniversary of the Canadian Walk to Make Cystic Fibrosis History. Registration begins at 9:30 a.m. and the walk is set to take place around 10 a.m. Vernon’s walk is three km long and will end with a closing ceremony at 11 a.m. Organizers ask that no pets be brought to the walk.

“I welcome everyone to join me and Walk to Make Cystic Fibrosis History,” said Verleg.

More than 4,300 Canadians live with Cystic Fibrosis, the most common fatal genetic disease among Canadian children and young adults. There is no cure.

To register or donate, visit www.cysticfibrosis.ca.

Related: Vernon puts wheels in motion for bike to work week

Related: Tickets for annual hospital gala almost sold out

To report a typo, email:
newstips@vernonmorningstar.com
.


@VernonNews
newstips@vernonmorningstar.com

Like us on Facebook and follow us on Twitter.

Just Posted

Salmon Arm council to revisit city lease of Canoe Beach cabin lots

Cabin owners signed final lease with city in 2016, with cabins slated to be removed late 2021

Serious injuries sustained in Highway 1 collisions west of Salmon Arm

Air ambulance needed at two accident scenes that closed highway Monday evening

Update: Lakeshore Drive open following single-vehicle collision

Traffic being diverted to 10th Avenue NE as emergency crews respond

Fines approved for Salmon Arm panhandling bylaw

Mayor and council stress fines to be issued as last resort

Salmon Arm council supports increase to development service fees

Bylaw enables city to recover more of the cost related to staff time

Okanagan-based pop star Andrew Allen is back with a new band

Singer-songwriter Andrew Allen is bringing his new band home for a concert this Friday

B.C. wine industry legend Harry McWatters dies

Among his accomplishments, McWatters founded the province’s first estate winery, Sumac Ridge Estate

Okanagan man grows tomato with an… unusual shape

The man could only conclude that it was a decidedly “male” tomato.

Provincial health body refuses to release full findings of cancer triage system audit

Information and Privacy Commissioner asked to review redactions

Southern resident killer whale died of blunt trauma, likely from ship

J34 was found more than two years ago near Sechelt, but the necropsy findings have now been released

$250,000 worth of property stolen from Okanagan storage

Police are investigating after a possible theft on the weekend

Our history in pictures: Fire!

The Salmon Arm Farmers’ Exchange is on fire! Firefighters try to save… Continue reading

Supportive housing first step to healing: BC Housing CEO

Shayne Ramsay explains changes to Rutland’s McCurdy development

Central Okanagan motorcycle crash causes two impaired driving investigations

The driver’s injuries, although serious, are not believed to be life-threatening in nature

Most Read