Jill Daum, at the Belfry theatre in Victoria. (Jonathan Hayward/The Canadian Press)

Jill Daum, at the Belfry theatre in Victoria. (Jonathan Hayward/The Canadian Press)

Alzheimer’s story from wife of Spirit of the West singer takes stage

Jill Daum, wife of musician John Mann, writes ‘Forget About Tomorrow’, playing now in Victoria

Jill Daum says writing a play about a family’s struggles with Alzheimer’s helped her get out of bed some days as she fought to accept her husband’s diagnosis of the cruel disease.

Daum is married to musician John Mann, the driving force behind the Canadian band Spirit of the West, who was diagnosed with early-onset Alzheimer’s almost six years ago and now, at age 55, lives in a care home.

“Forget About Tomorrow” opened Jan. 25 at Victoria’s Belfry Theatre and is scheduled to run until Feb. 18. It is also scheduled to start March 1 at Vancouver’s Arts Club Theatre.

“The story is fictional but it was certainly inspired by what I learned from living with John. What I learned as a caregiver and what I’ve had to watch him go through,” said Daum in an interview hours before the opening night performance.

READ MORE: Making music, with John Mann

READ MORE: John Mann shows indomitable spirit in new documentary

She said Alzheimer’s takes its toll on more than just the individual with the disease. It ransacks families and the play explores the decline of a family and couple as the disease slowly gnaws at long-standing bonds, she said.

“It’s about the wife who’s married to the person who gets the diagnosis and how it affects her and her family, and her path to accepting what her life will be,” Daum said. “She goes down a few rabbit holes … and eventually comes to a place of acceptance.”

Daum, who was rewriting lines right up until opening night, said the play evolved during sessions at a women’s writing workshop in Vancouver. She said she didn’t tell anybody about her husband’s diagnosis and the foundation of the play emerged during those gatherings.

“I started to write scenes about a woman whose husband had early-onset and nobody in the group knew John had it,” said Daum. “They were really impressed with my knowledge about the disease. I got to talk about what it was like for a caregiver. I got to do all of that without anybody knowing it was actually about me.”

“Forget About Tomorrow” is Daum’s first solo project, though she has collaborated on other plays.

She said Mann is not able to attend the Victoria performances.

“We’ve just gone through a really rough patch with him. But he’s still beautiful Johnny. He’s still snapping his fingers. There’s a lot of love for John in this show.”

She said Mann often helped her read lines in the scenes and he contributed two songs to the play.

The songs, “Forget to Forget,” and “Tom’s Song,” are the last songs Mann has written. The play opens and closes with the songs.

Daum said the play is an emotional roller-coaster, humorous and moving, as the family attempts to cope with upheaval in their lives. The performance arrives at a crossroad, where actor Jennifer Lines, who portrays the wife and caregiver, meets a new man and confronts a difficult decision.

“The dilemma is should Jane take it or stay with her husband when we all know in two years he won’t remember her name,” she said.

Daum said her personal road to acceptance of Alzheimer’s has been difficult, especially since the journey is continuing to its ultimate end.

“I will have a life past Alzheimer’s and John won’t. It’s hard for everybody,” Daum said.

Dirk Meissner, The Canadian Press

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

Alexandra “Annabelle” Lee and her grandpa Bryan Weightman enjoyed a shopping spree at the Sicamous Askew’s foods location after Weightman won a draw for a gift card. (Submitted)
Sicamous seven-year-old fills grandparents’ shopping cart after contest win

When her grandparents won an Askew’s Foods gift card, Alexandra Lee got to handle the shopping

Staff at R.J. Haney Heritage Village and Museum and community partners are preparing several interactive contests to help celebrate the 25th annual Heritage Week, Feb. 15 to 21. (Contributed)
Public to play interactive role in Salmon Arm Heritage Week celebration

R.J. Haney Heritage Village and Museum silent auction to kick off events on Feb. 15

A large portion of Anglemont is without running water due to a water main break on Jan. 26. (CSRD Image)
A large part of Anglemont in the North Shuswap is without water due to a water line break on Jan. 26. (Black Press File Photo)
Broken water main leaves Shuswap community without running water

The water line has left Anglemont residents either without water or with low pressure.

(Pixabay)
‘Roadmap out of COVID-19’: Innovate BC’s program helping businesses recover

CEO Raghwa Gopal said the tech sector is here to help brick and mortar businesses

A team of Salmon Arm Secondary Jackson campus staff and students, led by local artist Desiree Roy, helped create a work of art that will be used to transform a BC Hydro utility box. (File image)
Boring Salmon Arm utility box eyed for art project

Salmon Arm Secondary students part of project that recognizes Secwepemc territory

Dr. Penny Ballem, a former deputy health minister, discusses her role in leading B.C.’s COVID-19 vaccination program, at the B.C. legislature, Jan. 22, 2021. (B.C. government)
B.C. holds steady with 407 new COVID-19 cases Tuesday

14 deaths, no new outbreaks in the health care system

Vernon now has an approved 13 cannabis shops in town. (Jennifer Smith - Morning Star)
Vernon, the ‘Pot capital of B.C.’ greenlights two new stores downtown

Two more shops, within 240 metres, approved, despite neighbouring businesses opposition

11 more cases of COVID-19 have been linked to a cluster on Big White Mountain. Pictured above is TELUS park at Big White Ski Resort, Jan. 26. (Big White Ski Resort)
11 more cases of COVID-19 linked to Big White cluster

This brings the total case count to 225, according to health authorities in a Tuesday update

Jonathon Muzychka and Dean Reber are wanted on Canada-wide warrants. (Courtesy of Victoria Police Department)
Convicted killer, robber at large after failing to return to facility: Victoria police

Dean Reber, 60, and Jonathon Muzychka, 43, may be together

Oliver Elementary School
Former Oliver PAC treasurer charged with fraud returns to court

Belinda Yorke will be in court to fix a date for trial in February

Two fibreglass bees were stolen from Vernon’s Planet Bee Honey Farm Nov. 22, 2020. (Facebook)
Stolen bee returned to Vernon honey farm

Two months after thieves buzzed off with two bee sculptures, public tips led police one of them

B.C. Premier John Horgan listens during a postelection news conference in Vancouver on Sunday, Oct. 25, 2020. THE CANADIAN PRESS/Darryl Dyck
30% of B.C. recovery benefit applications held up in manual review

The province says 150 staff have been reassigned to help with manually reviewing applications

Adam Dergazarian, bottom center, pays his respect for Kobe Bryant and his daughter, Gianna, in front of a mural painted by artist Louie Sloe Palsino, Tuesday, Jan. 26, 2021, in Los Angeles. (AP Photo/Jae C. Hong)
Kobe Bryant’s presence remains strong a year after his death

Tuesday marks the grim anniversary of the crash that took their lives

Surrey RCMP are investigating after a pedestrian was struck and killed at 183 Street and Highway 10 Friday night. (File photo)

Most Read