Jill Daum, at the Belfry theatre in Victoria. (Jonathan Hayward/The Canadian Press)

Alzheimer’s story from wife of Spirit of the West singer takes stage

Jill Daum, wife of musician John Mann, writes ‘Forget About Tomorrow’, playing now in Victoria

Jill Daum says writing a play about a family’s struggles with Alzheimer’s helped her get out of bed some days as she fought to accept her husband’s diagnosis of the cruel disease.

Daum is married to musician John Mann, the driving force behind the Canadian band Spirit of the West, who was diagnosed with early-onset Alzheimer’s almost six years ago and now, at age 55, lives in a care home.

“Forget About Tomorrow” opened Jan. 25 at Victoria’s Belfry Theatre and is scheduled to run until Feb. 18. It is also scheduled to start March 1 at Vancouver’s Arts Club Theatre.

“The story is fictional but it was certainly inspired by what I learned from living with John. What I learned as a caregiver and what I’ve had to watch him go through,” said Daum in an interview hours before the opening night performance.

READ MORE: Making music, with John Mann

READ MORE: John Mann shows indomitable spirit in new documentary

She said Alzheimer’s takes its toll on more than just the individual with the disease. It ransacks families and the play explores the decline of a family and couple as the disease slowly gnaws at long-standing bonds, she said.

“It’s about the wife who’s married to the person who gets the diagnosis and how it affects her and her family, and her path to accepting what her life will be,” Daum said. “She goes down a few rabbit holes … and eventually comes to a place of acceptance.”

Daum, who was rewriting lines right up until opening night, said the play evolved during sessions at a women’s writing workshop in Vancouver. She said she didn’t tell anybody about her husband’s diagnosis and the foundation of the play emerged during those gatherings.

“I started to write scenes about a woman whose husband had early-onset and nobody in the group knew John had it,” said Daum. “They were really impressed with my knowledge about the disease. I got to talk about what it was like for a caregiver. I got to do all of that without anybody knowing it was actually about me.”

“Forget About Tomorrow” is Daum’s first solo project, though she has collaborated on other plays.

She said Mann is not able to attend the Victoria performances.

“We’ve just gone through a really rough patch with him. But he’s still beautiful Johnny. He’s still snapping his fingers. There’s a lot of love for John in this show.”

She said Mann often helped her read lines in the scenes and he contributed two songs to the play.

The songs, “Forget to Forget,” and “Tom’s Song,” are the last songs Mann has written. The play opens and closes with the songs.

Daum said the play is an emotional roller-coaster, humorous and moving, as the family attempts to cope with upheaval in their lives. The performance arrives at a crossroad, where actor Jennifer Lines, who portrays the wife and caregiver, meets a new man and confronts a difficult decision.

“The dilemma is should Jane take it or stay with her husband when we all know in two years he won’t remember her name,” she said.

Daum said her personal road to acceptance of Alzheimer’s has been difficult, especially since the journey is continuing to its ultimate end.

“I will have a life past Alzheimer’s and John won’t. It’s hard for everybody,” Daum said.

Dirk Meissner, The Canadian Press

Just Posted

Two mudslides close Seymour Arm road in North Shuswap, no one injured

Slides hit Seymour Arm Main Forest Service Road halfway between St. Ives and Seymour Arm

Help needed on restoration of historical cabin in the Shuswap

The Cache Cabin served as the halfway point on the journey to the Mara Lookout Ranger Station.

Lower lake levels could create bumper crop of invasive milfoil

The CSRD board received an update on efforts to suppress the invasive aquatic plant

Vernon and Sicamous cannabis stores get provincial nod

Spiritleaf in Vernon will be the Okanagan’s first cannabis store.

Okanagan-Shuswap weather: Unsettled skies dominate the week’s forecast

A chance of thunderstorms is in the forecast for much of the Okanagan-Shuswap.

Protesters rally in Victoria over newly approved Trans Mountain pipeline

The Still No Consent! No Trans Mountain! 20 kilometre march will end at Island View Beach

One Okanagan municipality has seen a crime increase in almost every statistical category, report says

Report states there were 617 offences in 2018; almost 100 more from last year in Lake Country

“Our community has had its heart broken”: South Okanagan celebrates life of David Kampe

Community and families members who knew Kampe give tearful addresses

Wildfire burning in coastal forest

A fire beside the Sea to Sky Highway is burning up a steep slope

PHOTOS: Event marks one year since soccer team rescued from Thai cave

Nine players and coach took part in marathon and bike event to help improve conditions at cave

Rock climber dies after fall at Stawamus Chief in Squamish

The man had fallen about 30 metres while climbing in the Grand Wall area

Five B.C. students taken to hospital after playing with vaping device

School district said students were taken to hospital ‘out of an abundance of caution’

Penticton Vees alumni Massimo Rizzo gets picked up by Carolina Hurricanes

Rizzo captained the Penticton Vees during the 2018-19 season, was drafted 216th overall

Most Read