Vancouver lawyer Gina Lupino was diagnosed with Parkinson’s disease at 38 and hopes to have deep brain stimulation surgery but has considered moving to another province because wait lists are so long in British Columbia. Lupino is seen in an undated handout photo. (THE CANADIAN PRESS/HO-Paperclip Law, Randal Hrytzak)

Patient says B.C. still behind in Parkinson’s brain surgery after announcement

Lawyer Gina Lupino concerned about B.C. wait lists compared with other provinces

At age 36, Gina Lupino felt her right arm and foot stiffening and tremors starting as she played a snare drum in a percussion band. She would see four neurologists over the next year and a half before learning she had Parkinson’s disease.

Her most recent specialist recommended deep brain stimulation surgery last fall because she experienced extreme fluctuations in how her body responded to medication, which sometimes wears off too early and other times doesn’t absorb at all.

On Tuesday, Lupino said she was excited to learn British Columbia plans to double the number of so-called DBS surgeries, up from 36 to 72 as part of an expanded program at UBC Hospital.

However, she was concerned about long wait lists compared with other provinces such as Alberta, Saskatchewan and Ontario.

RELATED: Mayo Clinic provides treatment option for Shuswap woman with Parkinson’s

“One of the things I’ve been looking at is moving to another province just to get this procedure, having to establish residency and a life there. But you can imagine how disruptive that is to my work, to my professional life, to my family,” said Lupino, an intellectual property lawyer specializing in U.S. patent, trademark and copyright prosecution.

Dr. Christopher Honey is the only neurosurgeon in B.C. who performs the invasive eight-hour procedure that is done while a patient is awake to target a specific area of the brain.

Health Minister Adrian Dix said the expanded program will mean another doctor will help replace patients’ worn-out batteries, each of which is implanted in a patient’s chest like a pacemaker, as the province works to recruit another neurosurgeon.

Dix said 70 patients are currently on the wait list for deep brain stimulation surgery.

Lupino said that number doesn’t tell the whole story because so many people like her — “a poster-child patient for DBS” — could wait up to four years just to get a consultation with a neurosurgeon before waiting another year for the operation.

RELATED: Standing tall against Parkinson’s disease

“The backlog of the surgery is one thing but the backlog is actually getting the consult,” she said.

“The concern that we’re having is that because DBS is such an intensive procedure it’s not just a one-day thing that you’re in the hospital,” she said, adding patients must return multiple times and that’s particularly expensive for those who don’t live in Vancouver.

“For people who are on disability and on a fixed income and depend on family members’ help for basic lifestyle- and self-care tasks, getting from somewhere in remote B.C. to UBC is really burdensome.”

Lupino considers herself fortunate because she has her own law practice and can accommodate her limitations by working from home or using speech-detect software to write when her right hand won’t co-operate.

“It’s hard to walk, it’s hard to just move. You feel like you’re embedded in molasses or in a pool of water and trying to run, or get dressed or shower or do basic tasks.”

Alicia Wrobel, spokeswoman for the Parkinson Society of British Columbia, said patients in some provinces have little wait time for deep brain stimulation surgery.

Saskatchewan has “virtually no wait list with three qualified neurosurgeons,” she said, adding Alberta has a wait list of six months and employs two neurosurgeons.

Christine Sorensen, president of the BC Nurses Union, said she fully supports shorter wait times and more access to surgeries for all patients but there aren’t enough nurses to care for them.

In a contract ratified last month, the union negotiated a so-called working-short premium requiring employers to pay all nurses on a unit an extra $5 per hour when adequate staffing levels have not been met.

“It’s unique to B.C. and it’s a very innovative idea,” Sorensen said. “It is our goal that the employers will hire more nurses so this penalty will not be paid. Nurses don’t want additional money, they want the nursing staff present in order to provide safe patient care.”

Camille Bains, The Canadian Press


Like us on Facebook and follow us on Twitter.

Just Posted

About 100 Scotch Creek residences without water after system damaged

Regional district reports someone tore lid off reservoir of Saratoga water system.

Lots of advance voting in the federal election for Salmon Arm

Advance polls remain open on Monday, Oct. 14 from 9 a.m. to 9 p.m.

Multi-talented musical couple bring their beautiful sounds to Shuswap

Pharis and Jason Romero come to the Nexus at First on Wednesday, Oct. 23

Contenders and Carlin Hall meet again for 18th annual magical visit

Much-loved musicians, Valdy and Gary Fjellgaard, along with Blu & Kelly Hopkins, tour Interior

Grey, damp, warm week ahead in Okanagan, Shuswap, Columbia

Environment Canada calling for clouds and showers, and warm temperatures, throughout the area

VIDEO: Langley woman’s security camera records its own theft

Langley family discovers early morning grab was recorded

Singh says NDP would form coalition with the Liberals to stop Tories

Singh was in a Liberal-held riding Sunday afternoon in Surrey where he was pressed about his post-election intentions

‘My heart goes out to the mother’: B.C. dad reacts to stabbing death of Ontario boy

Carson Crimeni, who was also 14, was bullied relentlessly, his dad says

BC Ferries filling up fast with post-Thanksgiving weekend travellers

Monday anticipated to be busiest day of the weekend

Morning Start: How old is the Canadian Thanksgiving tradition?

Your morning start for Monday, October 14th, 2019

‘Wham-bam out the door’: Surrey man’s front yard left ruined by scamming landscaper

Resident warns neighbours to be careful of door-to-door salesmen

B.C.’s rural paramedic program expands, with home support

Advanced care ambulance staff added for six communities

Canadian Snowbirds plane crashes before air show in Atlanta

Pilot lands safely after ejecting from jet

Letter writer disagrees with human-caused climate change

“The cost of climate change” [Shuswap Market News, Letters, Oct. 4] is… Continue reading

Most Read